Agency nursing offers many opportunities and diverse work for nurses. End-of-life care is a critical aspect of this, requiring compassion, empathy, and sensitivity. As a nurse, you may often be entrusted with the care of patients in their final stages of life. Here are just a few ways our Agency Nurses provide compassionate end-of-life care.
What does compassionate end-of-life care mean to you, and why is it important?
To me, it’s an honour and a privilege to be able to go into someone's home and help them achieve what they and their loved ones want. You’re not there to change anything, you’re there to help them achieve what they want. Yes, we’re there to do all the nursing things, but we are also there to emotionally support them and we’re there to make them feel comfortable. - Margaret
Respect Individual Choices and Autonomy
Every individual has unique preferences and values. It's crucial to respect these choices, even when providing end-of-life care. Engage in discussions about treatment options, pain management, and quality of life to ensure the patient's wishes are honoured. Empower patients to make decisions that align with their values and beliefs. Similarly, respect cultural and religious practices, ensuring that the patient's spiritual needs are met. By recognising and honouring individual autonomy, you can provide compassionate care that upholds the patient's dignity and sense of control.
How do you ensure that patients are treated with empathy and respect during end-of-life care?
Firstly, I think it is an absolute honour to share a space with someone who is passing. But for me it’s very intuitive, I am constantly looking at their face and holding space for them; allowing them the time to speak and let them be heard. Whatever we’re doing I am always very aware of them, I never rush a process and ensure that my patient is comfortable. I give them 100% of me and am fully present. So, my mind is completely with them and so is my heart. - Charlie
Establish Open and Honest Communication
Compassionate end-of-life care begins with establishing open and honest communication with patients and their families. Take the time to listen actively and understand their fears, concerns, and desires. Encourage them to share their thoughts, allowing them to express their emotions freely. Be empathetic, sensitive, and non-judgmental in your responses. By creating a safe space for communication, you can help patients and their families feel supported and valued throughout the end-of-life journey.
How do you approach end-of-life discussions with patients and their families?
You need to be open really and have open communication. I know some have a fear of death, but we celebrate the birth of a child, I believe we should celebrate the life of someone when they’re passing. Understand where they’re at, how they are feeling and support them. I like to learn about the person I am caring for: what’s their favourite music, what type of room lighting they prefer etc. I make sure they have all their wishes met. - Charlie
Address Physical and Emotional Comfort
End-of-life care often involves managing physical symptoms and emotional distress. As an agency nurse, prioritize the patient's comfort by effectively managing pain, nausea, and other symptoms. Collaborate with the healthcare team to develop a personalized care plan that addresses the patient's unique needs. Additionally, provide emotional support by offering a listening ear, providing reassurance, and facilitating counselling or spiritual guidance when necessary. Compassionate touches, such as holding hands or gentle massages, can also provide immense comfort during this difficult time.
How do you involve the patient's family and loved ones in the end-of-life care process?
I give them the freedom to do what they need/want to do, and I leave them with the choice. I say, ‘would you like me to give Mum/Dad their pain relief now or would you like to give it?’ Usually, they are happy for me to give it and that’s fine, that’s what we’re there for. - Margaret
Involve and Educate Family Members
Supporting the patient's family is an integral part of compassionate end-of-life care. Keep family members informed about the patient's condition, treatment options, and any changes in care plans. Offer opportunities for family members to ask questions and express their concerns. Provide education on what to expect during the end-of-life process, including signs of approaching death. Encourage family members to participate in the care, if they wish, while respecting their emotional boundaries. By involving and educating the family, you can empower them to provide emotional support to their loved ones and ease the burden they may feel.
How do you take care of yourself and prevent burnout when providing end-of-life care?
What I do first, is I look forward to that phone call when I am asked to do a shift. That call means that someone needs me and aren’t I lucky that I’ve had a phone call that says I can go and do that. When I come home, I try and get to bed early and have as much sleep as I can. But to me it’s about your own internal attitude to how you view what you’re doing. And for me it’s an honour and a privilege. - Margaret
To be the best carer you need to take care of yourself, and you’ve got to make the time. I do take care of myself and as I am only human, I get sad when people pass away so when I get home, I write poetry or my emotions. I like to go to the gym, or a walk and do some meditation, I have lots of avenues to nourish myself. And before I go to a shift, I send love ahead of myself to my clients, to the family, to the hospital. I ask for my cup to be overflowing so that I can give that overflow to other people that need it. - Charlie